AWCH Paediatric Support Link

AWCH Support Group Service is:

• for families with children who have a disability, syndrome, or chronic condition
• comprised of families who share common issues, experiences and problems
• made up of people who may offer each other emotional and practical support

What does the AWCH Support Group Service do?

• reduces isolation
• offers encouragement and support

Who uses the AWCH Support Group Service?
parents, doctors, social workers, nurses, psychologists, students, volunteers,
educators, community workers . . .

Contact AWCH if you would like to:

• find out if there is a group for your particular need
• refer a family to a support group
• obtain information, support and resources to start a group
• place your group on the AWCH Support Group Service database

Examples of organisations, disorders or illnesses listed on AWCH Support Group Service database include:

• Assoc of Genetic Support of Australasia - www.agsa-geneticsupport.org.au
• Australian Paediatric Surveillance Unit - www.apsu.org.au
• Bowel Group for Kids Inc - www.bgk.org.au
• Epidermal Nevus Syndrome
• Erithropoietic Protoporphyria
• Hirschsprung Disease
• Leigh Disease
• Moebius Syndrome
• Neutropenia - www.neutropenia.com.au
• Primary Intestinal Lymphangiectasia - www.littleleakers.com
• Schizencephaly
• Shprintzen Syndrome
• Tracheo Oesophageal Fistula

Esophageal Atresia - Pediatric Playbook
http://www.youtube.com/playlist?list=PL909E27C24F2C5DF7&feature=digest_mon
An excellent video produced by The Esophageal Atresia Treatment Program (EAT Program) at Children's Hospital Boston explaining the different types of Esophageal Atresia.