Association for the Wellbeing of Children in Healthcare
Gladesville Hospital
Building 40B
Cnr Victoria & Punt Rd
Gladesville NSW 2111
Tel: (02) 9817 2439
Fax: (02) 9879 4346
Toll Free (Parent Line)
1800 244 396
Rare Diseases &
Paediatric
Support Link
AWCH is a supporter of World Rare Disease Day, a global event held annually on the last day of February.
Its main objective is to raise awareness of rare diseases and their impact on not only the kids living with them and their families, but also on the wider community as a whole.
Family Experiences Living with a Rare Disease
Learn from other families, in their own words, what their journey has been like after a diagnosis www.babysfirsttest.org/family-experiences
The Canadian MPS Society has developed a video to share the stories of Canadians affected by Mucopolysaccharide (MPS) diseases and the Canadian MPS Society's vision of a brighter future. This is an informatiove story and something to consider no matter what Rare Disease people have.
for families with children who have a disability, syndrome, or chronic condition
comprised of families who share common issues, experiences and problems
made up of people who may offer each other emotional and practical support
What does the AWCH Support Group Service do?
reduces isolation
offers encouragement and support
Who uses the AWCH Support Group Service?
parents, doctors, social workers, nurses, psychologists, students, volunteers, educators, community workers . . .
Examples of organisations, disorders or illnesses listed on AWCH Support Group Service database include:
Good Beginnings provides free early childhood and practical parenting programs for children and families across Australia, based at their Early Years Centres or visits to your home.
22 November 2011
AWCH attended the Youth Health2011 – It’s Totally Important Conference in November in Sydney.
The conference ran over 3 days and was a wonderful mix of professionals and young people coming together to discuss youth health.
AWCH jointly hosted a pre-conference workshop which had a morning session discussing the rights of young people in healthcare and the standards required to protect those rights followed in the afternoon with presentations and discussion about training and workforce development in adolescent healthcare.
04 October 2011
AWCH organised an event to promote Mental Health Month by taking our Hospital Ward Grandparent volunteers and office volunteers on a Fish 'n' Ships tour.
The event showcased the importance of volunteering and its benefits to support and enhance a person’s wellbeing.
