.....WHAT'S NEW.....
! MEDIA RELEASE !
The launch of the
HEALTH CARE FOR KIDS
National Conference
Manly Pacific Hotel Sydney
4:30 PM - NOVEMBER 18 2008
ABC Radio National
'Life Matters'
discusses the Standards with Professor David Bennett
Her Excellency
Ms Quentin Bryce, AC
mentions AWCH in an exclusive interview with
Kerry O’Brien on the
7:30 Report
Watch the interview
or view the transcript at:
www.abc.net.au/7.30/
paediatric support link service |
A paediatric support group is:
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for families with children who have a disability, syndrome, or chronic condition
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comprised of families who share common issues, experiences and problems
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made up of people who may offer each other emotional and practical support
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reduces isolation
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offers encouragement and support
- parents, doctors, social workers, nurses, psychologists, students, volunteers, educators, community workers . . .
Examples of organisations, disorders or illnesses listed on PSL database:
| Australian Paediatric Surveillance Unit www.apsu.org.au | Leigh Disease |
| Association of Genetic
Support of Australasia (AGSA) www.agsa-geneticsupport.org.au/ |
Moebius Syndrome |
| Aicardi Syndrome | Neutropenia |
| Epidermal Nevus Syndrome |
Primary Intestinal Lymphangiectasia www.littleleakers.com |
| Erithropoietic Protoporphyria | Schizencephaly |
| Gastrostomy | Shprintzen Syndrome |
| Hirschsprung Disease | Tracheo Oesophageal Fistula |
Contact AWCH National Office if you would like to:
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find out of there is a group for your particular need
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refer a family to a support group
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obtain information, support and resources to start a group
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place your group on the AWCH PSL database
For more information visit our conference website at
www.kidsconference.org.au
